PBMT - Day 108
As usual, we headed to QM this morning for line care and that's where we got a piece of not-very-good news!! The VMA/HVA result has come back and they are higher than the last result recorded prior to transplant in Dec (VMA @ 0.7 and HVA @ 1.0 vs the most recent of VMA @ 5.1 and HVA @ 9.0) though still within the normal range. However, in addition to the two mysterious spots in Adrian's liver plus a slight uptake shown in the most recent MIBG Scan, things are not looking very good at the moment. Just so happened Dr Chan was doing teaching at the Day Ward, Mama interrupted and asked him a few questions. He didn't offer much insight as he was quite behind on Adrian's progress. He said he'd have to look at his files again to bring him up to speed. But like the Statistics rule, it's best to compare another set of result both on VMA/HVA and CT Scan in a few weeks/months to see the trend. So the word again is: Monitoring!!! We'd have to think about our next step... maybe a PET Scan...
1 comment:
So glad that Adrian was able to have a fun time with Barney! I wouldn't worry too much about his physio b/c he has been through so much. My son just turned 2 and he cannot jump- and when he kicks, he sometimes falls over. Adrian has spent so much time in recovery that he hasn't had a lot of time to just play or climb but in time, he will be just fine! I think of you all the time. Best wishes to all of you! Candice
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