April 23, 2007

Today we took Adrian back to K8S - Day Ward for blood count and check up. As expected, Blood count shows that Adrian is low on Haemoglobin (at 7.3) and he needed a blood transfusion. The Houseman didn't come to draw Adrian's blood at around 13:30 for blood match and the blood didn't arrive until almost 19:00. It took 4 hours for the entire infusion and we didn't leave the hospital until 23:00! Adrian was fussy the whole day... noticed there's a red dot on his tongue. The nurse said it could be the starting of the oral mucoscitis as a side effect of high-dose chemotherapy. We have to go back again on Friday for another blood count and I think Adrian may need Platelet infusion that time.

2 comments:

Ide Kaoru said...

I went to the following website (http://www.cancerbackup.org.uk/
Cancertype/Childrenscancers/
Typesofchildrenscancers/
Neuroblastoma)

and found out the following: (But I'm sure you're probably familiar with this. However, it does give us -- people who visits your site and have little knowledge about the illness -- hope.)

Neuroblastoma is an unusual type of cancer because younger children (under the age of 12 months) can get 'good risk' tumours. Stage 4S disease can often get better on its own. For these very young children, minimal, or even no treatment may be required. The child will just be carefully monitored for the next few years. The tumour will very often either disappear completely on its own, or it may develop into a non-cancerous (benign) tumour called a ganglioneuroma.

Ganglioneuromas are usually harmless and will not cause any problems or need any treatment.

Most children under the age of 12 months with neuroblastoma are cured.

Stay Strong!

Anonymous said...

Yes you are so right! I so wish Adrian's neuroblastoma was classified as stage 4S. However, since docs have found he has amplified copies of the MYCN genes and also the presence of cancer in Bone, they've concluded that he's in the high risk group and no longer fits in the 4S category but Stage 4. Therefore high-dose chemotheraphy is needed.

http://www.cancer.org/docroot/CRI/content/CRI_2_4_3X_How_is_neuroblastoma_staged_31.asp?sitearea=