July 31, 2008

PBMT - Day 234

It's a busy morning again as we made a trip to the school to drop off some fees & photos and pick up the uniforms. Surprised to find out the school is under renovation - the staff there mentioned they undergo minor renovation EVERY YEAR before school starts.

There's a slight change in Adrian's diet recently. Ever since we found out that Adrian loves "chewing" veggies, Mama started to prepare some cooked veggies for him to eat before each meal. It seems to work fine and hopefully this will bring his oral motor skills up to speed more quickly. Adrian is just exceptional - while most kids dislikes veggies, he just loves them! And he hated the ice cream that Mama gave him to try out the other day... strange Adrian!!!

Appetizer for Adrian: cooked spinach

July 30, 2008

PBMT - Day 233

It's the second consecutive day both Mama and Adrian were up really early in the morning (i.e. 05:30 for Mama and 06:00 for Adrian). We were hoping to feed Adrian breakfast before the test as well as to tire him out so he can have a good sleep for the test. Again, the test ran smoothly and it took less time than yesterday's because only the abdomen part was scanned. However, we have to be back for the last return scan on Friday.

We were able to talk to the doctor about Adrian's recent elevated VMA/HVA readings. He didn't have any comments but mentioned we should get another urine sample and retest it again. Unlike last time where Adrian was abstained from having the vanilla flavored Pediasure, we also pulled out the TCM herbs this time just to play safe.

July 29, 2008

PBMT - Day 232

We returned to QM for the actual MIBG Scan this morning. It's the first time Adrian was placed in the second time slot (a 10:30 appointment), hence both Adrian & Mama were up early (i.e. 05:30am!) for breakfast because Adrian was required to fast 4 hours prior to the test. With both the oral sedation as well as the rocking momentum from Mama, Adrian was fast asleep and the test ran smoothly as planned. The return scan will take place tomorrow at 10am!

July 28, 2008

PBMT - Day 231

Adrian had a busy schedule today - OT session at DK in the morning and then to QM in the afternoon for the MIBG contrast. Both Mama and OT were happy to see Adrian's progress... His achievements over the past month includes drinking from a straw cup (only water though), willing to try out new food/fruit such as watermelon and peach and he's able to chew down a chunk of choy sum at times. Things we need to work on after this session includes training to drink from a cup, practicing the blowing technique as well as continuing to try out new food/fruit. We hope to bring good news to the therapist again on our next visit on Aug 22nd. The QM visit was a pleasant one until the Houseman came to setup a block on Adrian's hand for the MIBG contrast. We are keeping the "block" just in case oral sedation wouldn't work tomorrow.

On a side note, we found out the latest VMA/HVA result from July 21st. Unfortunately, the HVA level is a bit out of the normal range (HVA at 12 while it's considered normal below 10). Not sure if it was due to the lack of water intake the night prior to urine collection (Adrian passed out at 19:00ish and slept the whole 12 hours without drinking milk/water). Will have to talk to the doctor tomorrow.

July 27, 2008

PBMT - Day 230

Papa took the role of "the primary caretaker" for Adrian as Mama went to check out the Book Fair on her own. Having spent 4 hours at the Book Fair, she bought lots of books, crayons and a 3-D puzzle for Adrian. The three of us went out shopping later in the day.... It's just a wonderful experience shopping for our little Adrian - getting him ready for school in mid August!

Adrian's scribbling while we were having Pizza for dinner.

July 26, 2008

PBMT - Day 229

Adrian cried the least in the last ST session at Caritas this morning. Though he didn't behave the greatest, at least he was willing to cooperate but not fussed at the session. Adrian will take a break after these ST sessions and we'll see if he improves through going to school in 2 weeks' time.

July 25, 2008

PBMT - Day 228

We found out yesterday that the school has forgotten to send the confirmation letter to us. Instead of them sending the letter to us officially, we've decided we'll make a trip to the school this morning to pick up the stuff and to order the uniforms for Adrian. Adrian was very patient (playing) when Mama was busy putting on sample uniforms (in different sizes) on him. We finally settled for the size and were busy writing cheques for the fees. Can't believe Adrian is starting school in less than a month's time. We were given a list of things to prepare and having paid all fees, it's becoming so surreal!!!