PBMT - Day 231
Adrian had a busy schedule today - OT session at DK in the morning and then to QM in the afternoon for the MIBG contrast. Both Mama and OT were happy to see Adrian's progress... His achievements over the past month includes drinking from a straw cup (only water though), willing to try out new food/fruit such as watermelon and peach and he's able to chew down a chunk of choy sum at times. Things we need to work on after this session includes training to drink from a cup, practicing the blowing technique as well as continuing to try out new food/fruit. We hope to bring good news to the therapist again on our next visit on Aug 22nd. The QM visit was a pleasant one until the Houseman came to setup a block on Adrian's hand for the MIBG contrast. We are keeping the "block" just in case oral sedation wouldn't work tomorrow.
On a side note, we found out the latest VMA/HVA result from July 21st. Unfortunately, the HVA level is a bit out of the normal range (HVA at 12 while it's considered normal below 10). Not sure if it was due to the lack of water intake the night prior to urine collection (Adrian passed out at 19:00ish and slept the whole 12 hours without drinking milk/water). Will have to talk to the doctor tomorrow.
1 comment:
Praying for great results and answers for the elevated level - as per our email earlier we also questioning liquid intake - to much of it affecting the results, shall let you know if i find out anything, please also let us know
Prayers for ned always
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