April 30, 2007

Adrian is gradually recovering from mucoscitis... will ask doc to reduce the Morphine dosage tomorrow. He's feeling tired most of the day even though he slept a lot these days. CCF (Children's Cancer Foundation) organized a "facial" event for all mommies in the ward today and I pampered myself when baby was napping.

April 28 - 29, 2007

I sure hope the worst is over for Adrian's mucoscitis. While he was sleeping most of the day yesterday, he's awake most of the time today and he finally smiled. It's his first smile since Thursday. Adrian is still living on TPN & Morphine but at least he could eat a little which is a lot better than last time. Continued GCSF shot on both days but neutrophils was still at its trough @ 0.02. Dr. Chiang mentioned that one of the drugs (cisplatin) that will be used in the third chemo may affect his hearings as a side effect (causing Tinnitus). So baby will have to do a pre-screening test on hearing to assess the difference.

April 27, 2007

Adrian is feeling better today, at least he could sleep with the help of Morphine. The HMO this month is Dr. Chiang, he's very attentive and has started TPN on Adrian. So we didn't push him to eat knowing his mouth sore and that he'd get enough nutrients through TPN. Surprisingly, Dr Chiang prescribed GCSF shot for Adrian at this early stage. His logic is to boost up baby's neutrophils level so he can recover soon from mucoscitis on his own. It's the first time we were being "isolated" in the semi-private room since Adrian had fever before being admitted and with low red/white blood cell counts. There's pros and cons being in the semi-private room, Adrian seemed to be a little bored (& myself) as he likes to meet other people and he's not allowed to play in the library corner... however, we have more privacy and I even played some kids' VCD to baby today.

April 26, 2007

Adrian was discharged from the hospital last Thursday, in exactly a week's time, he's back to the hospital again! His next appointment was supposed to be Friday tomorrow. He was so cranky last night which was awful... First, we noticed he's got quite a few bruises over his legs and arms and secondly, his gum bled. Those were signs of low platelet counts... So we decided to take him back to the hospital a day earlier than planned and found out his platelet was only at 7!! He also had high temperature which is quite common for kids with low counts. So, he ended up back to K8N for at least a week for the antibiotics. What's worse is his mouth sore (i.e. his mucoscitis has finally come!!) and so he didn't eat well. At the end of the day, he had platelet transfusion and morphine injection to release his mouth pain. Let's hope he can have a good night sleep tonight!

April 25, 2007

Adrian had a good night sleep last night. He's never been home for that long and I think he's more used to it. On the other hand, I finally had time to upload some of the pictures from the cell phone online. It's sad to see how much damage chemo has caused and Adrian is now more skinny & his skin has turned darker...

Adrian was transferred back to K8N from ICU late Feb 2007.


Adrian in K8N early March 2007, noted that he still got hair...


Adrian had the GCSF Shot on his back on Apr 11th ... he's almost bald now!


Adrian enjoyed playing in the library corner.

April 24, 2007

Adrian slept most of the day today... he should be feeling tired as his count is dropping. I think we should get a new crib for him. However, I tend to find that cribs in HK are generally smaller than those in Canada. The one that he's sleeping now is too small and didn't intend for him to use it for that long (we thought he was going to use it for 2 weeks while we were in HK). There's two times when he got waken up just because he didn't have enough space to turn in the crib...

April 23, 2007

Today we took Adrian back to K8S - Day Ward for blood count and check up. As expected, Blood count shows that Adrian is low on Haemoglobin (at 7.3) and he needed a blood transfusion. The Houseman didn't come to draw Adrian's blood at around 13:30 for blood match and the blood didn't arrive until almost 19:00. It took 4 hours for the entire infusion and we didn't leave the hospital until 23:00! Adrian was fussy the whole day... noticed there's a red dot on his tongue. The nurse said it could be the starting of the oral mucoscitis as a side effect of high-dose chemotherapy. We have to go back again on Friday for another blood count and I think Adrian may need Platelet infusion that time.