Oct 31, 2007

It's Adrian's second Halloween... no trick or treating this year as we stayed home! Adrian continued to make good progress on his walking! He refused to be held a lot of times when he walks and I'm really proud of him being so brave that he's not afraid even when he falls. Here's a pic from last year's:-

Adrian's first Halloween in 2006!
(Special thanks to Mitchie for doing the artwork! :)

Oct 29, 2007

We went to QM Monday today instead of the usual Tuesday (Day ward will be closed tomorrow for exams). Adrian had the blood test and line care. Met with the M.O. at the Day Ward and apparently he still hasn't heard from the Liver Surgery Team yet (he didn't know Prof and I have already spoken). According to the protocol, Adrian should start ABMT next week - but since they are running out of rooms, baby may have to do another 3F8 before ABMT, or Surgery in this case. We'll be back again on Friday and will see what happens.

Oct 27 - 28, 2007

THREE great things happened this weekend:-

1) Received a call from Professor Fan on Sunday morning! Adrian's records & films have been traced and arrived safe & sound on Professor's desk. We had a nice discussion over the issue of baby's liver surgery and once again, he reassured me that it's doable. However, the final say resides on the Oncology Team. He's going to touch base with our doctors tomorrow to discuss it further. I really appreciate his effort to personally follow up on our case.

2) Mama finally bought Adrian a new highchair!!! Believe it or not, Adrian has been using his walker as highchair on feeding. Initially we didn't realize we'd stay in HK this long and we didn't want to spend the money. But feeding baby on the walker has become a challenge since baby moves around a lot these days. That made the purchase is necessary - Adrian seems to like it so far and hopefully it's a good investment and it will make meal time more enjoyable for the both of us.

3) Lastly, Adrian took the initiative to walk unsupported for about 10 steps today!!! This is a huge milestone for Adrian and we do look forward to seeing him actually walk before ABMT! It's about time to start our house proofing as well.... :)

To sum it up, Papa uploaded some of the old/new pictures from his D70 camera... we have mixed feelings seeing baby's old pictures. Here are they...

Adrian is ready for his first flight at Pearson Airport on Feb 9, 2007!!! Little did we know it's the start of our nightmare.... :(((((


At home back in March 2007.




Having gone through 5 chemos, surgery & a couple of 3F8s.. see the difference...


This is how Adrian looks TODAY! The worst is not over yet..

Oct 26, 2007

Haven't heard anything from the Professor's office nor doctors from K8N telling us the progress on the possibility of the Liver Surgery for Adrian - Mama decided to call again to the Prof's office to see what had happened today when we were at the Day Ward. To my surprise, the secretary told me that the team still HAD NOT received the films (i.e. CT Scans, MRI etc) yet from the Oncology team!!!! I was confused simply because I was told the films have been sent for weeks!!! There's got to be some miscommunication between the two departments and in the end, we suffered.. I hate to be nosy, and after a discussion with our M.O. - I did find out who had picked the films up a couple of weeks ago and told the Prof's secretary and hopefully she will follow up with that person. Other than that, Adrian was doing ok on his usual blood test. It's funny that our CCF Counselor didn't recognize Adrian (at first sight) not until she saw me!!! Baby has looked so different in her eyes since she hasn't seen him for a month or so... Yes - his hair, eyelashes and eyebrows are all growing back!

Oct 23, 2007

Mama finally took the initiative to call up Professor's office to follow up on the progress yesterday. We were told that the team has borrowed the CT Scans and films for a week and still hasn't contacted us yet. Afterall, it's still a waiting game! We, on the other hand, are back to the Day Ward today for blood work and line care. Adrian looks a bit different to other moms in the ward because of his growing hair. Mama is happy to find out a lot of them commented that baby has grown a lot (one even used the word "mature" to describe Adrian) since the last time they saw him. We are hoping Adrian can put on as much weight as possible before ABMT. Blood counts showed that his Neutrophils is at 0.73 and Platlet up to 73. They are still considered low (effects after RT) but at least they are on a rising trend. Will be back to the Day Ward again on Friday.

Oct 18, 2007

It's another QM day today... Originally we were supposed to be back every Tue & Fri but since tomorrow will be a public holiday, we were asked to come back today instead. Adrian is in good shape these days with his hair growing nicely. Mama managed to talk to Dr Chan, the NB Specialist, while he was making the ward rounds at the Day Center. He said the absence of pain from baby's last 3F8 treatment means that his body's immune system has started to come back fighting against the antibodies. In other words, it's not a good sign from the medication perspective; On the other hands, it means baby is slowly recovering and becoming normal since he last had chemo in July. The last 3F8 treatment was supposed to be the last one before the ABMT but because of some urgent cases, Adrian may not be able to start his in early Nov and may have to be postponed for another month. Meanwhile, they'll do another 3F8 on him during the time lag but I doubted if it'd be useful to do it now as it was meant to be AFTER ABMT when his body is weak with no fighting power against the antibodies. We will touch base with the Liver Surgery group on Monday to see the progress. I guess IF Adrian did go for surgery, that might solve the timing issue....

Oct 16, 2007

Adrian is back to QMH today for routine blood work and line maintenance. Mama brought along his favorite blanket and meals thinking that we have to stay there long as baby may need blood transfusion today since his haemoglobin level was only 8.2 on Friday (blood transfusion required if haemoglobin is < 8 ). Surprisingly, the blood result came back with good news... though his Neutrophils and Platelet were both dropping due to RT, his haemoglobin level had a rebounce - it's up at 8.9!! So we left the hospital around noon and Adrian had a good nap at home. We still have not heard anything yet from the Liver Surgery Team and we are contemplating whether to make a call to Prof Fan to follow up on the Progress. Doc at the Day Ward said she will follow up again as well. We'll see what happens...