PBMT - Day 123
First time to C6 at QM and found it not so impressive. It's pretty small with only 12 beds there and there's no separate rooms for patients who need isolation. Mama "graduated" from the line care process! She passed the third exam which means we'll only have to go to QM once a week for blood work from now on. No results on VMA/HVA yet, but the next CT Scan has been booked on May 13th!!! We didn't stay at the ward for long and afterwards we went to the Pharmacy to get some prescribed heparinzed saline for line flushing. While we had to wait for our turn to get the stuff at the Pharmacy area, Adrian almost "ran" everywhere and he didn't want to be held hands with Mama at all! Got so tired the end of the day chasing him around. He's simply uncontrollable and treated the hospital as his fair playground!!!
April 9, 2008
PBMT - Day 121
Mama took Adrian to Central this morning for his second TCM appointment. We didn't wait that long (at least a lot better than last time) or maybe it's because we got a visitor to keep us company during our wait. The waiting was simply a photo session where Aunt S who sneaked out from work brought along a camera and shot a few pictures of little Adrian. Other patients in the waiting area must have thought we were crazy!! Sadly, hospital/doctor's visits are the only times Adrian can get out of the house and so everyone is excited to seeing him. The TC was pleased that Adrian was able to finish the medicine last time and he's prescribed a week of TCM for him this time. According to TCM, long term health maintenance is essential for cancer patients and Adrian is no exception. We left the clinic around noon and we took a bus back home! It's the FIRST time Adrian rode the bus... he was very excited and well behaved during the whole journey.
Mama took Adrian to Central this morning for his second TCM appointment. We didn't wait that long (at least a lot better than last time) or maybe it's because we got a visitor to keep us company during our wait. The waiting was simply a photo session where Aunt S who sneaked out from work brought along a camera and shot a few pictures of little Adrian. Other patients in the waiting area must have thought we were crazy!! Sadly, hospital/doctor's visits are the only times Adrian can get out of the house and so everyone is excited to seeing him. The TC was pleased that Adrian was able to finish the medicine last time and he's prescribed a week of TCM for him this time. According to TCM, long term health maintenance is essential for cancer patients and Adrian is no exception. We left the clinic around noon and we took a bus back home! It's the FIRST time Adrian rode the bus... he was very excited and well behaved during the whole journey.
April 8, 2008
PBMT - Day 120
We had our last visit at K8 today because they will be temporarily moved to a new area (C6) starting this coming Thursday for renovation. It was a short stay there and we didn't get assigned a proper room or bed to stay. Mama passed the second time for changing the line dressing for Adrian. She'd have to do it again this Friday and then she'd be done. Also, the VMA/HVA collection was done this morning and hopefully results will be out next week. So, Adrian resumed having Pedisure this evening. We sold the convertible backpack/stroller that was brought from Canada last year as we don't foresee any use of it given the fact that Adrian can now walk and he stays home most of the time. Hopefully someone could put good use of it...
We had our last visit at K8 today because they will be temporarily moved to a new area (C6) starting this coming Thursday for renovation. It was a short stay there and we didn't get assigned a proper room or bed to stay. Mama passed the second time for changing the line dressing for Adrian. She'd have to do it again this Friday and then she'd be done. Also, the VMA/HVA collection was done this morning and hopefully results will be out next week. So, Adrian resumed having Pedisure this evening. We sold the convertible backpack/stroller that was brought from Canada last year as we don't foresee any use of it given the fact that Adrian can now walk and he stays home most of the time. Hopefully someone could put good use of it...
April 5, 2008
PBMT - Day 117
Adrian followed the strict urine marker guideline starting today which means he needs to be abstained from having vanilla flavor Pediasure until next Tuesday. Mama substituted Pediasure with the UHT milk at night feed. We also booked an appointment with the TCM doctor again next Wed for consultation. Since Adrian tolerated the Chinese Herbal Medicine really well, we figured we'd also try TCM for Adrian's good health in alternate weeks with Accutane. Ideally, Adrian takes Accutane for a week and while he stops at the second week, he'd have some Chinese Herbal Medicine for regular health maintenance.
Adrian's having fun with the hula loop.
Adrian followed the strict urine marker guideline starting today which means he needs to be abstained from having vanilla flavor Pediasure until next Tuesday. Mama substituted Pediasure with the UHT milk at night feed. We also booked an appointment with the TCM doctor again next Wed for consultation. Since Adrian tolerated the Chinese Herbal Medicine really well, we figured we'd also try TCM for Adrian's good health in alternate weeks with Accutane. Ideally, Adrian takes Accutane for a week and while he stops at the second week, he'd have some Chinese Herbal Medicine for regular health maintenance.
Adrian's having fun with the hula loop.
April 3, 2008
PBMT - Day 115
During our QM visit today, Mama performed the line care for Adrian - she flushed Adrian's central line and changed his dressing in front of the nurse in preparation for doing such at home. Having completed it the first time, she'd have to do it two more times at QM before she can do it at home. The visit today was meant to be a short one without blood work but we didn't leave until noon. What a coincidence that we saw Dr Chan was doing his teaching at the ward and we chose to stay behind and waited til he finished so we can have a short discussion over the issues for Adrian. He didn't offer much advice in the end as he "thinks" the two spots in liver are nothing major. They are too small for a needle biopsy at this stage. As for VMA/HVA, we'll bring the urine sample again on our next visit (next Tues) which means Adrian will have to abstain from Pediasure 48 hours prior. A request for another CT Scan has been sent and we will be advised once the date has been set. Well, those were the action items so far and there's really not much we could do... whether it be good or bad, time will tell!
During our QM visit today, Mama performed the line care for Adrian - she flushed Adrian's central line and changed his dressing in front of the nurse in preparation for doing such at home. Having completed it the first time, she'd have to do it two more times at QM before she can do it at home. The visit today was meant to be a short one without blood work but we didn't leave until noon. What a coincidence that we saw Dr Chan was doing his teaching at the ward and we chose to stay behind and waited til he finished so we can have a short discussion over the issues for Adrian. He didn't offer much advice in the end as he "thinks" the two spots in liver are nothing major. They are too small for a needle biopsy at this stage. As for VMA/HVA, we'll bring the urine sample again on our next visit (next Tues) which means Adrian will have to abstain from Pediasure 48 hours prior. A request for another CT Scan has been sent and we will be advised once the date has been set. Well, those were the action items so far and there's really not much we could do... whether it be good or bad, time will tell!
April 2, 2008
PBMT - Day 114
Surprisingly, we got a call from DK this morning about an appointment being scheduled for Adrian to meet with an Occupational Therapist & Speech Therapist on April 22nd. Thought it'd take months for the first appointment as we were told last week by the social worker and we are glad that it's finally here. Unfortunately, the appointment is going to take place in the afternoon (that's when Adrian usually naps). They don't have any morning appointments in April and the earliest one will be in June. We didn't want to wait much longer and figured we'd settle for this afternoon one. Will see what it brings...
Surprisingly, we got a call from DK this morning about an appointment being scheduled for Adrian to meet with an Occupational Therapist & Speech Therapist on April 22nd. Thought it'd take months for the first appointment as we were told last week by the social worker and we are glad that it's finally here. Unfortunately, the appointment is going to take place in the afternoon (that's when Adrian usually naps). They don't have any morning appointments in April and the earliest one will be in June. We didn't want to wait much longer and figured we'd settle for this afternoon one. Will see what it brings...
April 1, 2008
PBMT - Day 113
We got two packages of herbal medicine at the TCM visit last Friday for Adrian. Now that Adrian has finished another cycle of Accutane last Sunday, Mama finally found time today and made the herbal medicine for Adrian. Knowing that the Chinese herbs are best known of its bitterness, she added dried dates in and hopefully Adrian can accept it. Mama had a sip before feeding it to Adrian and still found it's not the greatest in taste.... However, to our BIG surprise - Adrian drank the whole thing in less than 10 mins! No wonder people always says patients who have undergone chemo have different taste buds!!!
We got two packages of herbal medicine at the TCM visit last Friday for Adrian. Now that Adrian has finished another cycle of Accutane last Sunday, Mama finally found time today and made the herbal medicine for Adrian. Knowing that the Chinese herbs are best known of its bitterness, she added dried dates in and hopefully Adrian can accept it. Mama had a sip before feeding it to Adrian and still found it's not the greatest in taste.... However, to our BIG surprise - Adrian drank the whole thing in less than 10 mins! No wonder people always says patients who have undergone chemo have different taste buds!!!
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