Sep 13, 2007

2nd day of 3F8 Treatment didn't run as smooth as the 1st day. Adrian was in so much pain that he had 1 extra shot of Morphine when compared to yesterday. His head got so swollen at the end of the day that he was so fussy and he needed another shot of Piriton to release the allergy. All the drugs have caused him drowsiness and so breakfast & lunch were the only meals he had today. The CT Report came back today - the remaining 2 "small" tumors in the liver now measures 2cm x 1cm and 3mm respectively and they are heavily calcified. The doctors said it's good news as baby continued to respond well on chemotherapy & immunotherapy treatments. But I honestly don't know what would happen if the tumors are still there at the end of ALL treatments... Doc said BMT is scheduled approx. 6 weeks after baby finishes Radiotherapy.

Sep 12, 2007

Adrian is back to his 2nd home, K8N, this morning for his 3rd 3F8 Immunotherapy Treatment. Baby was assigned in a semi-private room when we got there because the wards were completely full!!! Later in the day when some patients were discharged, we got transferred back to the big ward with Adrian's best buddy as our neighbour! The treatment started around 13:00 and lasted about 1.5 hours. I think Adrian has grown bigger and stronger for staying home in the past few weeks, he seemed to tolerate the pain better. Despite a few shots of Morphine, Valium & Piriton, he woke up around 17:00 and was able to have some soup and dinner whereas he basically gave into exhaustion the last time. Let's hope he can be the same for the remaining 4 days...

Sep 11, 2007

Tuesday is the day Adrian goes back to QMH for blood work and line maintenance. Originally as we were always told, Adrian was supposed to be well recovered from his counts and then Radiotherapy starts. However, Dr Chan was doing the Ward rounds today and apparently he's the specialist on NB. He asked if Adrian was due on his 3F8 treatment.... Then all of the sudden, everyone realized Adrian can have 3F8 treatment while waiting for his counts. Apparently, 3F8 Immunotherapy treatments are not chemos and it can be done in 28 days interval and his 3rd one was due Aug 30. Therefore, baby will have 3F8 tomorrow and RT will start right after. Doc said as long as Adrian's counts are in a rising trend, RT can start anytime. His Neutrophils is at 0.59 and Platelet at 80 today. Baby was very grumpy today at the Day Ward and he'd cry out loud whenever Mama went to the washroom or downstairs to buy stuff. He wasn't in a good mood at all or maybe he knew he has to be back to K8N tomorrow?!?!?!

Sept 8 - 10, 2007

Adrian is completely BALD with literally NO HAIR!!! Papa decided to hand picked the THREE remaining hair on Adrian's head this weekend...

September marks the 7th months that we got "stuck" in HK... it also meant that both Papa & Mama are one year wiser!! Mama finally found time to chop off half of her hair so it's easier to handle for Adrian's upcoming BMT and she doesn't have to blow dry it anymore. Papa also had his haircut and both of us got a chance to take a break and meet with some old friends.... Our ONE & ONLY wish this year - Our little Adrian, please get well soon!!!!!!

Sept 7, 2007

We spent the day at QMH today on blood test as well as a CT-Scan Appointment. The CT is the first one since Adrian had the surgery in July. In fact, this is part of the regular check up every 3 months to see the progress (mIBG is scheduled on Sept 17). There's not much change on Adrian's blood test result on Neutrophils (at 0.58) and Platelet rose a bit to 55 - still far from the requirement. Our CT Scan appointment was supposed to be at 14:30 but the scanning department didn't call us to get ready until almost 15:30. Baby was so tired (nap time) and I kept annoying him just so he could fall into deep asleep for the test. The test ran smoothly and we'll know the result next Tue.

Here's some snapshots on Adrian while he's playing the drum set today at the Day Ward.




"What d'ya looking at????".. says Adrian

Sept 6, 2007

Adrian has been pretty strange in these couple of days... He cried in the middle of the night and when Papa rushed to his room and found out that he's squeezed himself to the corner of the crib leaving no space for him to stretch and turn!!!!! Lucky that he'd fall back asleep once you move him back to a comfy position. But it has happened during his afternoon nap and at least 2 times at night. We've tried to put him in the middle of the crib but then you'd find him at the corner when he's awake. Strange Strange.. maybe he was dreaming of "walking" at night that he slowly pushed himself to the corner??? We have no clue...

Sept 4, 2007

Adrian has been eating and sleeping well at home this past week. His weight surpassed the 10 kg mark and is now at 10.1 kg - that's close to how much he weighted when he was first diagnosed over 6 months ago. I felt like he has stopped growing since 10 months old... At 16 1/2 months old, not only does he not know how to walk, he doesn't even know how to chew (though he has lots of teeth) or how to use a sippy/straw and keep refusing bottles. But I guess these are minor as long as he can regain his health! His counts are still low with Neutrophils at 0.59 and Platelet at 44. I wonder when he's going to make it for RT???