June 9 - 10, 2007

It's been awhile since we last spent the weekend at the hospital. Adrian seemed to calm down a bit and he has been feeling tired most of the weekend. He's losing appetite as expected and I think his mucoscitis is coming. Reassessment Bone Scan & MIBG were originally scheduled for tomorrow but we were told today that they will need to be postponed to June 25 because there's some problems with the manufacturer on the MIBG Isotope (i.e. the radioactive substance that will be absorbed by the body to do the test).

June 8, 2007

No words can explain how fussy, cranky & grumpy Adrian was today... he cried so much even the nurse called up the doctor on duty to take a look at him to see what happened. As a matter of fact, I think he just wasn't feeling comfy after chemo. My arms and legs are so sore now as I was holding Adrian most of the day in order to calm him down. Baby had finally moved to a more desirable bed slot this evening and hopefully he likes it better since he'll be staying for at least 5 more days for the antibiotics.

June 7, 2007

While we thought Adrian could leave the hospital tomorrow after finishing his 4th cycle of chemotheraphy, he had fever started this evening which means he'd need to stay behind for at least 5 more days for antibiotics!!! We are going to talk to the ward manager tomorrow about swapping beds as the bed slot that Adrian was allocated to was too crowded in this case (i.e. for an additional 5 more days) as it's beside the tap with heavy traffic. It's quite annoying sometimes especially with an easy-awaken baby!

June 6, 2007

Adrian is getting more used to the warmer room temperature in K8N. He behaved normal on his 2nd day of chemo but started to lose his appetite. We were quite worried after learning two doctors in the team will be away the end of the month and that's when we figure out if Adrian is viable for surgery or not after this cycle of chemo... We'll see how it goes.... Had a conversation with one of the researchers there and she told me that kids with Neuroblastoma tend to be smarter than other normal kids (because of the "over-active" neurons???). Well, I'd rather have a dumb kid who is cancer free...

Jun 5, 2007

First day back at K8N!! Adrian weighted more at 9 kg after spending two weeks of mini-vacation at home. However, he was quite cranky today mainly because of the internal temperature there. The AC doesn't seem to work properly and baby has been feeling very warm throughout the day. He only had an hour nap as he woke up in the middle of his nap with his head all wet. 1st day of his 4th cycle chemo ran smoothly until this evening. The meds started to work its way and Adrian threw up twice at night feed. I do hope he can get a good night sleep tonight and well rested!

Jun 2 - 4, 2007

Special thanks to my Aunt & Uncle Yun who bought the dried peanut skin that we were looking for along with the boiled peanut skin soup for Adrian late Friday night. Adrian had some over the weekend and looks like it does the trick... the blood test results today showed that Adrian's Platelet level finally surpassed the minimum (at 129) threshold of a 100 with Neutrophils at 1.38. He's all ready to go for his 4th chemo tomorrow. Baby is due back to the hospital tomorrow at 08:30 for 4 hours pre-hydration before the meds go in at around noon. Our "vacation" at home has almost come to an end! Here's some of the pictures from the visit today at K8S.


Adrian is still learning to stand...


Mommy & Baby

June 1, 2007

There's a big improvement on Adrian's Neutrophils level after the GCSF shot yesterday. It's now at 0.76 and Platelet at 83. Adrian is scheduled for another blood test on Monday to see the final number and the 4th cycle of chemo should start by next Tuesday on June 5th. The nurse in the ward told us a recipe that many of the kids in the ward are trying - boil "peanut skin" with water - apparently, the "rumor" is it helps the growth of platelet. Papa woke up early today and checked out 4 shops but none of them sell "peanut skin". Will keep on trying!!