- The Audio/Hearing Test at 09:30. The test took about 30 mins and based on what was tested, the audiologist has identified assymmetric hearing loss with his Left ear poorer with moderate-severe hearing loss (2000 Hz) and Right ear with normal to moderate-severe hearing loss (4000 Hz - high frequency)! She suggested Adrian should get hearing aid at this point. But we weren't so sure how reliable is the test result since Adrian wasn't very interested in testing that he even refused to do one of the tests. Will follow up with them again in 6 months and probably an Ear & Nose doctor. Meanwhile, Mama has signed an authorization form so they'll send our file to the specific dept at York Regions in regards to Speech Delays for the Hearing Impaired Kids.
- The original appointment with Dr Baruchel was supposed to be at 10:45, but we didn't get to see him until almost 12:45. We went over the reports... The CT Scan still showed a hypodense lesion in his liver (as always) and because they don't have the previous Scans as reference, Dr will request a MIBG/ultrasound to be done in the next month or so just to play safe. As a matter of fact, he said this is very common for post-transplant patient and in most cases, they are "fibrosis". As for his hearing test, Dr said they'll be proactive and will help us book more tests/assessments/or to see some specific doc with respects to Adrian's hearing problems. In addition to all these, Adrian's last urine/blood work were all normal!
- Our last appointment of the day, Cardiac Echo, at 13:30. Again, Adrian got so freaked out everytime he was asked to take off his shirt and lay down on bed for test. Fortunately, the room has a ceiling TV and Adrian got to choose his favorite Teletubbies show for entertainment and had Mama actually sit in BED with him. It test took over an hour again and we are happy that everything is normal!
We were given urine bottle again which means Adrian will have to abstain from certain food before providing the sample to SickKids sometime next week.
Spent more than 30 mins in the waiting room for Dr Baruchel.
On our way to Echo, Adrian stopped to watch the "piggy stunts".
1 comment:
Great News Jen ! So happy for you all and especially for Adrian, trusting the MIBG scan will continue to show NED always and forever! God Bless and hugs from us all!
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