PBMT - Day 224
Thanks goodness that we were able to collect Adrian's urine to bring it to QM first thing in the morning. This is our second follow up appointment as an outpatient - we got there around 09:30 but didn't get to see the doctor until almost noon. And, we were being assigned to a doctor whom we wouldn't have chosen him to see if we had the say. The doc asked briefly how Adrian was doing and examined his abdomen. The few hours wait ended with less than 10 mins time in the doctor's office. We later proceeded to the pharmacy where we needed to get KI (Potassium Iodine) for Adrian's upcoming MIBG scan (scheduled on July 28th) and so we didn't get home until 13:00 for lunch!!! Adrian is still recuperating today though he slept for 12 hours straight last night, he fussed almost the whole day (maybe due to tiredness from yesterday) and when we put him to bed to nap, he fell asleep within seconds.
July 20, 2008
PBMT - Day 223
We were invited to join a lunch buffet party at Shangri-La. It was hosted by Make-A-Wish - One of our friends from K8N had the opportunity to invite 10 of his special friends to celebrate his wish for a Plasma TV come true! And, we are so honored to be part of it. It was a very nice gathering with our buddies from K8N and the kids got a chance to meet up again. There were two volunteers who came along and the kids played some games after our feast. Adrian was a bit shy and it's until the end that he was all warmed up. Instead of his usual nap time, we went to support the launch of the drawing book, "A Story of the Little Bald People", by a group of childrens with cancer at the nearby bookstore. There we met up with some familiar faces from CCF. It was a busy day afterall and Adrian was completely exhausted. He passed out when we were on our way to dinner and went straight to bed after we got home tonight, which means he skipped milk/water before bed. Let's hope we can still collect his urine for our QM visit tomorrow morning.
We were invited to join a lunch buffet party at Shangri-La. It was hosted by Make-A-Wish - One of our friends from K8N had the opportunity to invite 10 of his special friends to celebrate his wish for a Plasma TV come true! And, we are so honored to be part of it. It was a very nice gathering with our buddies from K8N and the kids got a chance to meet up again. There were two volunteers who came along and the kids played some games after our feast. Adrian was a bit shy and it's until the end that he was all warmed up. Instead of his usual nap time, we went to support the launch of the drawing book, "A Story of the Little Bald People", by a group of childrens with cancer at the nearby bookstore. There we met up with some familiar faces from CCF. It was a busy day afterall and Adrian was completely exhausted. He passed out when we were on our way to dinner and went straight to bed after we got home tonight, which means he skipped milk/water before bed. Let's hope we can still collect his urine for our QM visit tomorrow morning.
July 19, 2008
PBMT - Day 222
We had an informal interview at the Kindergarten this morning. It was the school we passed by and didn't intend to send Adrian into in the first place. The meeting was conducted by one of the nursery school teachers where she toured us around the classrooms & playground in the nursery section. Adrian behaved very well during the entire course of the meeting that he played the toys on the table while we were talking about all the details. Luckily he didn't get tested otherwise he would have been failed! We got to know more about the school during the 30 mins meeting. They will let us know by mail in a week's time if they will take Adrian for September admission though the teacher said there shouldn't be any problems!! Look forward to receiving their reply...
We had an informal interview at the Kindergarten this morning. It was the school we passed by and didn't intend to send Adrian into in the first place. The meeting was conducted by one of the nursery school teachers where she toured us around the classrooms & playground in the nursery section. Adrian behaved very well during the entire course of the meeting that he played the toys on the table while we were talking about all the details. Luckily he didn't get tested otherwise he would have been failed! We got to know more about the school during the 30 mins meeting. They will let us know by mail in a week's time if they will take Adrian for September admission though the teacher said there shouldn't be any problems!! Look forward to receiving their reply...
July 18, 2008
PBMT - Day 221
In preparation of the upcoming VMA/HVA (urine collection) testing next Monday (we are due to have a follow up appt at QM on Jul 21st), Adrian stopped having the vanilla flavoured Pediasure as night snack and subsituted with UHT starting tonight. We are hoping for normal results again this time.
In preparation of the upcoming VMA/HVA (urine collection) testing next Monday (we are due to have a follow up appt at QM on Jul 21st), Adrian stopped having the vanilla flavoured Pediasure as night snack and subsituted with UHT starting tonight. We are hoping for normal results again this time.
July 16, 2008
PBMT - Day 219
We got a call from someone at DK regarding the results of Adrian's fine motor skills assessment performed on June 6th. Adrian was 25 months old that time but his skills only reflect a 20-21 months old toddler. They will organize a total of 8 one-hour sessions for kids similar to Adrian's situation (to a max. of 4 kids) for special trainings. However, the estimated wait time is about 3 months' time.
We got a call from someone at DK regarding the results of Adrian's fine motor skills assessment performed on June 6th. Adrian was 25 months old that time but his skills only reflect a 20-21 months old toddler. They will organize a total of 8 one-hour sessions for kids similar to Adrian's situation (to a max. of 4 kids) for special trainings. However, the estimated wait time is about 3 months' time.
July 15, 2008
PBMT - Day 218
We headed to Central for Adrian's TCM appointment this month. Mentioned to the doc that Adrian seems to have difficulty passing his stool these days. He usually poos 1-2 times a day and it's now down to once a day or once every 2 days. We also noticed that Adrian has more gas since he started drinking from the straw cup. We were given 3 weeks' supply of TCM and hopefully this will help to regulate his intestines and bowel movements.
We headed to Central for Adrian's TCM appointment this month. Mentioned to the doc that Adrian seems to have difficulty passing his stool these days. He usually poos 1-2 times a day and it's now down to once a day or once every 2 days. We also noticed that Adrian has more gas since he started drinking from the straw cup. We were given 3 weeks' supply of TCM and hopefully this will help to regulate his intestines and bowel movements.
July 14, 2008
PBMT - Day 217
Adrian played tourist and had his first ride on the MTR yesterday evening. In fact, it's his first time crossing the harbour to the Kowloon side. We had a nice stroll at the new mall where there weren't a lot of people. Adrian could walk freely and he didn't want to be held until the time he came by a group of strangers that he needed Papa to carry him. Guess he must be really happy exploring the city that he didn't want to sleep until almost midnight last night.
Adrian at the mall.
Adrian likes to take the escalator. He had Papa going up and down a few times with him.
First time on MTR.
Adrian played tourist and had his first ride on the MTR yesterday evening. In fact, it's his first time crossing the harbour to the Kowloon side. We had a nice stroll at the new mall where there weren't a lot of people. Adrian could walk freely and he didn't want to be held until the time he came by a group of strangers that he needed Papa to carry him. Guess he must be really happy exploring the city that he didn't want to sleep until almost midnight last night.
Adrian at the mall.
Adrian likes to take the escalator. He had Papa going up and down a few times with him.
First time on MTR.
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