PBMT - Day 201
Adrian had his 3rd ST session at Caritas this morning. Again, there's not much improvement on Adrian's weak mouth muscles (poor oral motor skills) since the last session in May. This session didn't run very smoothly as well because Adrian wasn't cooperating at all! He cried and just hated when the therapist was trying to put her hands around his mouth. The therapist utilized a couple of exercises/toys such as balls, bubbles & fishing game to encourage Adrian to utter some words associated with the games. Adrian enjoyed the games but he wasn't willing to say the words. He'd get mad everytime we were withholding the toys unless we heard him say it. In conclusion, the therapist found that Adrian doesn't quite know how to use his lips to pronounce. We have to find ways to motivate him and practise more using his lips.
June 27, 2008
PBMT - Day 200
Adrian has been abstained from having TCM since he had the flu on Father's day. Despite the heavy rain this morning, we arrived at the TCM clinic at 10:00 for our long due appointment. The whole appointment was a pleasant one with Adrian running and socializing with everyone at the clinic. He even went in the front desk and played with the two receptionists there, picking up the phone in the fax machine, scribbling on a piece of paper and moving stuff on the desk. When it's our turn, Adrian showed his hands/tongue to the doctor and according to the doc, he's doing ok. In the end, doc gave him 2 weeks' of TCM to clear his last bit of flu symptoms (minor cough) and we will return in 3 weeks' time.
Adrian has been abstained from having TCM since he had the flu on Father's day. Despite the heavy rain this morning, we arrived at the TCM clinic at 10:00 for our long due appointment. The whole appointment was a pleasant one with Adrian running and socializing with everyone at the clinic. He even went in the front desk and played with the two receptionists there, picking up the phone in the fax machine, scribbling on a piece of paper and moving stuff on the desk. When it's our turn, Adrian showed his hands/tongue to the doctor and according to the doc, he's doing ok. In the end, doc gave him 2 weeks' of TCM to clear his last bit of flu symptoms (minor cough) and we will return in 3 weeks' time.
June 26, 2008
PBMT - Day 199
Getting very frustrated taking care of Adrian these days. Not that he's not behaving but feeling very depressed at times that Adrian still acts like a baby in many ways. The fact that he still does not know how to chew and drink from a straw cup have made Mama very stressed. After the OT&ST appointment the other day, she's decided from that day on - Adrian can only drink water from a straw but nothing else (no more spoon fed)!! So Adrian only drank minimal amount of water from the straw in the past two days (as expected) and her worse fear happens. We suspect Adrian constipated... he usually does his "business" early in the morning but nothing came out today. Mama gave up and spoon fed him water and he finished 8 oz of water in less than 5 mins! At the end of the day, Adrian poo'ed and just as Mama thought her mission was a complete failure; Adrian drank more than 6 oz of water from the straw cup when Papa gave him the cup tonight. He must have liked Papa more :-( Hopefully he'll slowly get into the habit of drinking from the straw cup.
Getting very frustrated taking care of Adrian these days. Not that he's not behaving but feeling very depressed at times that Adrian still acts like a baby in many ways. The fact that he still does not know how to chew and drink from a straw cup have made Mama very stressed. After the OT&ST appointment the other day, she's decided from that day on - Adrian can only drink water from a straw but nothing else (no more spoon fed)!! So Adrian only drank minimal amount of water from the straw in the past two days (as expected) and her worse fear happens. We suspect Adrian constipated... he usually does his "business" early in the morning but nothing came out today. Mama gave up and spoon fed him water and he finished 8 oz of water in less than 5 mins! At the end of the day, Adrian poo'ed and just as Mama thought her mission was a complete failure; Adrian drank more than 6 oz of water from the straw cup when Papa gave him the cup tonight. He must have liked Papa more :-( Hopefully he'll slowly get into the habit of drinking from the straw cup.
June 25, 2008
PBMT - Day 198
Adrian was supposed to have a TCM appointment today but it got canceled because Typhoon #8 was hoisted. That brought back our memory of last August that we were leaving K8N the night when Typhoon #8 was hoisted (and unfortunately had to go back the day after because of neutropenic fever). It feels so good to be staying home when it's pouring outside, most of all, Papa got half day off to spend with Adrian!!
Adrian was supposed to have a TCM appointment today but it got canceled because Typhoon #8 was hoisted. That brought back our memory of last August that we were leaving K8N the night when Typhoon #8 was hoisted (and unfortunately had to go back the day after because of neutropenic fever). It feels so good to be staying home when it's pouring outside, most of all, Papa got half day off to spend with Adrian!!
June 24, 2008
PBMT - Day 197
Busy at DK for Physio, OT & ST appointments all happening in the morning. Adrian seems to be fairly comfortable now at the Physio session that he wasn't behaving... When asked to lie on tummy on top of the therapist to train up his arm muscles, he refused to do so after a few minutes and got up to play other stuff. Little Adrian didn't cooperate at all when taking the stairs or walking up/down a step (as obstacles). He'd just do it a couple times and then he'd go and do other stuff. The Therapist was surprised to see what used to be a shy little guy has turned into a "real" toddler with emotions! After the physio session, we headed to our next appt of the day - OT & ST session. Mama felt bad that she didn't achieve anything before coming to this OT&ST appt. Adrian still have problems on eating that he simply does not know how to chew, has no ideas how to use a straw not to mention talking! His mouth muscle is so poor that he fails everything has to do with his mouth (eating/drinking/talking). Adrian, however, behaved well at this session. He showed his tongue to the speech therapist when asked to and played cheerfully in the room while Mama was telling the therapists of her difficulties. In fact, Adrian has been a lot more verbal now than before that at least he can say a few words but it's not enough according to the standards of a 2-yr old kid. Meanwhile, another OT session will be scheduled on a monthly basis for the next two months to train up his mouth msucle. Next mixed session of OT&ST will be in 4 months' time (Oct 2008).
Busy at DK for Physio, OT & ST appointments all happening in the morning. Adrian seems to be fairly comfortable now at the Physio session that he wasn't behaving... When asked to lie on tummy on top of the therapist to train up his arm muscles, he refused to do so after a few minutes and got up to play other stuff. Little Adrian didn't cooperate at all when taking the stairs or walking up/down a step (as obstacles). He'd just do it a couple times and then he'd go and do other stuff. The Therapist was surprised to see what used to be a shy little guy has turned into a "real" toddler with emotions! After the physio session, we headed to our next appt of the day - OT & ST session. Mama felt bad that she didn't achieve anything before coming to this OT&ST appt. Adrian still have problems on eating that he simply does not know how to chew, has no ideas how to use a straw not to mention talking! His mouth muscle is so poor that he fails everything has to do with his mouth (eating/drinking/talking). Adrian, however, behaved well at this session. He showed his tongue to the speech therapist when asked to and played cheerfully in the room while Mama was telling the therapists of her difficulties. In fact, Adrian has been a lot more verbal now than before that at least he can say a few words but it's not enough according to the standards of a 2-yr old kid. Meanwhile, another OT session will be scheduled on a monthly basis for the next two months to train up his mouth msucle. Next mixed session of OT&ST will be in 4 months' time (Oct 2008).
June 23, 2008
PBMT - Day 196
First day back to QM as a day patient at the Outpatient clinic in the G/F of Block K. Because of Adrian's recent flu dilemma, we were asked to wait outside the clinic so other kids will not be affected. The nurse called us to get in when it's our turn - First, Adrian needed to be weighted and measured. It's funny they treated him as a real "baby", he was put on a baby bench & scale for all the measurements! Next, the doctor called us and we are really pleased it was Dr Chan who was seeing Adrian today. It feels strange to see doc was sitting in front of the computer busy typing stuff. He went over the latest reports (BAEP, CT Scan & blood) with me and summarizing it on his computer. He later examined Adrian's abdomen, scrotum and lymph nodes around his neck etc. Remarks have been put on the screen about the next MIBG appointment will be due in July and CT Scan probably in Nov 2008. Little Adrian got so impatient that he kept running in & out of the consultation room. As a matter of fact, Mama was really thankful to have met some old friends from K8N at the clinic - they sure have helped her a great deal in keeping an eye on Adrian while she was busy lining up for booking our next appointment (in 4 weeks' time on July 21st) and getting drug prescriptions done. And, as Dr Chan has put it - we finally made it down there at the outpatient clinic after a year long of treatment!!!
Got doc's confirmation - Adrian officially says "bye bye" to these meds below. He will only be on Accutane from now on.
First day back to QM as a day patient at the Outpatient clinic in the G/F of Block K. Because of Adrian's recent flu dilemma, we were asked to wait outside the clinic so other kids will not be affected. The nurse called us to get in when it's our turn - First, Adrian needed to be weighted and measured. It's funny they treated him as a real "baby", he was put on a baby bench & scale for all the measurements! Next, the doctor called us and we are really pleased it was Dr Chan who was seeing Adrian today. It feels strange to see doc was sitting in front of the computer busy typing stuff. He went over the latest reports (BAEP, CT Scan & blood) with me and summarizing it on his computer. He later examined Adrian's abdomen, scrotum and lymph nodes around his neck etc. Remarks have been put on the screen about the next MIBG appointment will be due in July and CT Scan probably in Nov 2008. Little Adrian got so impatient that he kept running in & out of the consultation room. As a matter of fact, Mama was really thankful to have met some old friends from K8N at the clinic - they sure have helped her a great deal in keeping an eye on Adrian while she was busy lining up for booking our next appointment (in 4 weeks' time on July 21st) and getting drug prescriptions done. And, as Dr Chan has put it - we finally made it down there at the outpatient clinic after a year long of treatment!!!
Got doc's confirmation - Adrian officially says "bye bye" to these meds below. He will only be on Accutane from now on.
June 22, 2008
PBMT - Day 195
Other than a couple more coughs here and there, Adrian is almost recovered from his flu. While Adrian has refrained from the outside world this past week, the coming week will be a busy one that he'll resume his normal activities such as going to QM for his monthly appointment (with the Oncology Doc.), DK for physio, OT & ST on Tuesday and to Central for TCM appointment on Wednesday. Just today we took Adrian out to enjoy the sun...
Here are the pictures:-
Other than a couple more coughs here and there, Adrian is almost recovered from his flu. While Adrian has refrained from the outside world this past week, the coming week will be a busy one that he'll resume his normal activities such as going to QM for his monthly appointment (with the Oncology Doc.), DK for physio, OT & ST on Tuesday and to Central for TCM appointment on Wednesday. Just today we took Adrian out to enjoy the sun...
Here are the pictures:-
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