Feb 28, 2008

PBMT - Day 80

Another day to QM for routine blood work and line care. Knowing that Adrian will be bored like last time, Mama brought along small toys to go inside the isolated room this time. But what's worst is Adrian didn't even get assigned a bed!!! It's simply an EMPTY room with two chairs! So, Adrian walked everywhere and got so tired by noon. We didn't wait for the blood result today and left as soon as Adrian finished his lunch since we assumed everything is all right. The result for the nasal mucus that was drawn on Monday came back negative - which is good; As for the Norovirus - the nurse kept looking at the screen but there's no mention of the term Norovirus but Rotavirus which got us really confused. The nurse is going to check with the doctor and let us know next Monday. Meanwhile, the Piriton didn't help much and Adrian still has a runny nose and cough though he's starting to pick up his appetite...

Adrian at the Day Ward today.

Feb 25, 2008

PBMT - Day 77

We are back at the Day Ward this morning for blood work & line care. It's the first time where Adrian was required to quarantine in an isolated room within the Day Ward. Though it was only 2-3 hours stay there, Mama was so bored with no TV/toys in the room. Adrian, however, enjoyed the added space and walked every corner of the room. Dr Cheuk came by and advised us that Adrian can start Accutane again today (liver function is improving). Mentioned to the doc about Adrian having cold symptoms, nasal mucus was drawn to see if there's any virus. Results for Bone Scan & MIBG are in... Bone Scan is clear; but for MIBG - result is similar to the previous one that there's still a slight uptake in the right lobe of liver!!! Doc said it's ok but when Mama wanted to ask more questions, Adrian cried out loud as the nurse was putting the tube in baby's nose to collect the nasal mucus. Baby's Neutrophils went up to 3.48 with Platelet at 197 and HGB at 10.6. Looks like Adrian's body produces higher than normal Neutrophils to combat against the cold that he caught, a similar situation happened on the day when we brought Adrian back to K8N last time for diarrhea. Will be back to the Day Ward again on Thursday!

Pix taken today in the Day Ward. Adrian is a size smaller after the diarrhea saga!

Feb 24, 2008

PBMT - Day 76

Adrian has not been feeling well in the past few days. He's developed a runny nose and cough - he coughs more at night and that's bothering him especially at bed time. Will mention it to the doctor tomorrow when we return to the Day Ward for line care & blood work.

Feb 21, 2008

PBMT - Day 73

Though it didn't take long for Adrian to get asleep back home, he woke up a few times in the middle of night crying. Papa, again, needed to sleep beside his crib (like at QM) to soothe him back asleep. Then, there's a fever scare.... Adrian was at marginal temp (low grade fever at around 37.8C) and Mama was so close to bringing him back to QM this morning. Luckily, it was only a scare as the temperature later subsided. After spending 10 days at QM, Adrian had some adjustments to make at home like he's again not used to sleep in his room... and since he's not getting well rested at night/nap time, he fussed at breakfast & dinner time. Let's hope he'd behave better tomorrow.

Feb 20, 2008

PBMT - Day 72

Beyond our expectation, we are HOME as I type! Same routine as yesterday's except Adrian fell asleep by oral sedation (no needles!) for the MIBG return scan. It was a short one today with the main focus on the abdomen. Mama was surprised when the technician said Adrian is done today as she was anticipating another return scan tomorrow or the next day since this has been the pattern in the past! We were told we could leave as soon as we got back to the ward. Though we suspect there's still Norovirus in Adrian's stool sample plus he's still having a couple of loose stools daily, baby has been feeling all right given he eats/drinks well and not being bothered too much by the virus. We are just going to isolate him at home (as usual) instead of K7N!! Adrian didn't nap after the test and got so tired by the end of the day. We arrived home around 21:30 and Adrian fell asleep shortly after....

Feb 19, 2008

PBMT - Day 71

First day of MIBG didn't run quite smoothly.... with an early appointment and the fact that Adrian got up late this morning, he wasn't able to fall into deep sleep for the test with oral sedation. In fact, he was so close to sleep but he got awake everytime when we moved him over to actual bench. The technicians were so patient but after struggling for more than an hour, we all gave up and had doctor gave Adrian two more doses of sedation through IV. Adrian slept through the test and woke up around noon. He didn't nap today and was so tired this evening that he passed out in 10 mins after Mama put him to bed tonight. He will have to do a MIBG return scan tomorrow morning. On the other hand, Adrian seems to tolerate the milk all right that he only had two bowel movements today and they were quite normal.

Feb 18, 2008

PBMT - Day 70

Adrian woke up before 05:00 this morning and stayed awake til the afternoon. He was so tired (and maybe starved too) that it took less than 5 mins for him to fall asleep after sedation. Bone Scan ran smoothly and finished before 15:00. We'll have to return again first thing tomorrow morning for MIBG. Adrian's ALP level is still higher than normal but got better than the result from last Thurs'. Neutrophils went back up to 1.06 with Platelet at 159 and HGB at 10.7. Mama reintroduced milk to Adrian after having stopped for 2 weeks because of diarrhea, instead of Pediasure - it's Nutren Junior this time due to the brand rotation at the hospital. Baby didn't quite like it at first but still managed to drink the usual 8 oz before bed time!