Autologous Cord Blood (Stem Cell) Transplantation - Day 21
Adrian's Neutrophils level went back down to 0.26 with Platelet only at 19. He received 2 units of Platelet and the GCSF shot resumed. His diarrhea seemed to have come back and baby is once again suffering from the red bum. It's only 21 days post transplant afterall....
Our lives have not been the same ever since Adrian was diagnosed with NB early in 2007. We feel so blessed to have so many people care about us. Even people who do not know us that well are stepping up and offering love and support to us. We cannot tell you all how thankful we are and hopefully 2008 would bring us better luck and good news! Happy New Year!
Dec 30, 2007
Autologous Cord Blood (Stem Cell) Transplantation - Day 20
As expected, Adrian's Neutrophils dropped today at 0.63 after doc has stopped giving him GCSF shot.
As expected, Adrian's Neutrophils dropped today at 0.63 after doc has stopped giving him GCSF shot.
Dec 29, 2007
Autologous Cord Blood (Stem Cell) Transplantation - Day 19
After 6 days of GCSF shot, Adrian's Neutrophils level is up to 2.00 today surpassing the benchmark of 1. Since he has had 3 consecutive days of Neutrophils level above 0.50, doc has concluded that his Neutrophils have successfully engrafted!!! No more GCSF shot and we anticipated a drop in his Neutrophils tomorrow. Mama has been feeling sick in the past 2 days and it got worsen today. She got sent home in the afternoon and Papa became the primary caregiver from now on....
After 6 days of GCSF shot, Adrian's Neutrophils level is up to 2.00 today surpassing the benchmark of 1. Since he has had 3 consecutive days of Neutrophils level above 0.50, doc has concluded that his Neutrophils have successfully engrafted!!! No more GCSF shot and we anticipated a drop in his Neutrophils tomorrow. Mama has been feeling sick in the past 2 days and it got worsen today. She got sent home in the afternoon and Papa became the primary caregiver from now on....
Dec 28, 2007
Autologous Cord Blood (Stem Cell) Transplantation - Day 18
Adrian's diarrhea situation has improved quite a bit though he still has 4 - 5 times of loose stool a day. The stool that we sent to the lab in the past 3 days has shown a negative which means baby is clear from the bacteria, so one less antibiotics to take from now on. It's a busy day as Adrian needed both blood & platelet transfusions today. Neutrophils is up again at 0.76 and GCSF continued. Had a conversation with the nurse and apparently Neutrophils is only one of the major components in body's white blood cell. It's considered stable when it reaches 1 or above. However, there's other components in white blood cells may take longer (up to 1 year) to grow back to normal which equate to a weak immune system for at least a year!!!
Adrian's diarrhea situation has improved quite a bit though he still has 4 - 5 times of loose stool a day. The stool that we sent to the lab in the past 3 days has shown a negative which means baby is clear from the bacteria, so one less antibiotics to take from now on. It's a busy day as Adrian needed both blood & platelet transfusions today. Neutrophils is up again at 0.76 and GCSF continued. Had a conversation with the nurse and apparently Neutrophils is only one of the major components in body's white blood cell. It's considered stable when it reaches 1 or above. However, there's other components in white blood cells may take longer (up to 1 year) to grow back to normal which equate to a weak immune system for at least a year!!!
Dec 27, 2007
Autologous Cord Blood (Stem Cell) Transplantation - Day 17
Adrian graduated from the official BMT unit and moved to a new isolated room early this morning. This isolated room has double door (you have to close the first one before opening the second one) and it's a lot bigger with its own private bathroom!!! It's no less than the previous room as both rooms use different air filtration system to ensure air is clean. Baby's Neutrophils is up at 0.54 today and doc has stopped his TPN today!
Adrian graduated from the official BMT unit and moved to a new isolated room early this morning. This isolated room has double door (you have to close the first one before opening the second one) and it's a lot bigger with its own private bathroom!!! It's no less than the previous room as both rooms use different air filtration system to ensure air is clean. Baby's Neutrophils is up at 0.54 today and doc has stopped his TPN today!
Dec 26, 2007
Autologous Cord Blood (Stem Cell) Transplantation - Day 16
Adrian is overwhelmed by all his new toys he got from Christmas! He enjoyed reading the new kiddie books, playing with the blocks and most of all his all time favorite pony-ride!!! Mama, however, was busy packing this afternoon as we were officially informed that we'll be moving to another isolated room tomorrow. Adrian still has diarrhea 4-5 times a day - which is a lot better than last week. He's less fussy at meal times as well so maybe the TPN will stop in the next day or so. Neutrophils went up again at 0.49 with the help of the GCSF shot.
Adrian is overwhelmed by all his new toys he got from Christmas! He enjoyed reading the new kiddie books, playing with the blocks and most of all his all time favorite pony-ride!!! Mama, however, was busy packing this afternoon as we were officially informed that we'll be moving to another isolated room tomorrow. Adrian still has diarrhea 4-5 times a day - which is a lot better than last week. He's less fussy at meal times as well so maybe the TPN will stop in the next day or so. Neutrophils went up again at 0.49 with the help of the GCSF shot.
Dec 25, 2007
Autologous Cord Blood (Stem Cell) Transplantation - Day 15
Neutrophils is up to 0.36 and the GCSF shot continued until Neutrophils reaches 1 as per the nurse. On the other hand, Adrian received 2 units of Platelet transfusion today. A group of Paediatrics' doctors all dressed up and some even brought along their kids to be the Christmas Carolers to bring smile and presents for the sick kids. Maybe Santa thinks Adrian is good & behaving this year.... Baby was being spoiled with gifts!!! Thanks to everyone who thought about little Adrian in this holiday season. Mama & Papa (with the help of the grannies) also bought something for Adrian and he'll see it first thing tomorrow morning, on Boxing Day!
Neutrophils is up to 0.36 and the GCSF shot continued until Neutrophils reaches 1 as per the nurse. On the other hand, Adrian received 2 units of Platelet transfusion today. A group of Paediatrics' doctors all dressed up and some even brought along their kids to be the Christmas Carolers to bring smile and presents for the sick kids. Maybe Santa thinks Adrian is good & behaving this year.... Baby was being spoiled with gifts!!! Thanks to everyone who thought about little Adrian in this holiday season. Mama & Papa (with the help of the grannies) also bought something for Adrian and he'll see it first thing tomorrow morning, on Boxing Day!
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