July 31, 2007

Adrian had the longest sleep ever... he slept around 15:00 yesterday til 08:00 this morning. He had breakfast real fast as he hasn't had food for almost 24 hours. His weight is dropping from 9.6 kg to 9.1 kg and breakfast was his only meal today. I tried to feed him dinner but soon after he's finished, he vomited EVERYTHING! Will have to mention to doc tomorrow about the possibility of giving Adrian TPN this time. The 3F8 reaction was mild today and Dr. Chan said the chemo last week may have suppressed baby's reaction towards the drugs.

July 30, 2007

Adrian is due back to the hospital this morning. He only had 1 meal (i.e. breakfast) and he threw up twice today. 3F8 started early in the afternoon... despite the pain, his reactions were considered mild this time. He's extremely tired and with the Morphine injection, he slept the whole afternoon and didn't wake up for dinner either. I do hope he can get some good quality sleep tonight and we'll see what tomorrow brings.

July 29, 2007

While Adrian's 5th chemo has come to an end, the side effects have begun to show up... Baby has lost pretty much his appetite and he threw up twice today after lunch and snack. He had a long nap however, and we left the hospital around 5pm for home leave tonight. Docs did a blood test on Adrian prior to 3F8 and it showed that his counts are dropping with Neutrophils only at 0.36 and Platelet at 57. Well, the grannies were happy to see Adrian home and I can manage to upload some pictures online.


Adrian is suffering from fever, suspected drug caused fever from 3F8 last week.


Swollen Adrian... from 3F8


Poor baby is recovering...

July 28, 2007

Got some clarification from Dr. Chan and had a peek at the actual biopsy report, it seems as though the tumor remained in Adrian's liver has been pretty much calcified!! :) They have scheduled Adrian for another MIBG in September and probably a CT Scan to see the progress by then. Adrian is done with his 5th chemo today and post-hydration runs for 24 hours. We may be able to have a day of home leave tomorrow after the post-hydration if all goes well. Second course of 3F8 will start on Monday.

July 26 - 27, 2007

No vomiting yet for Adrian this time around though he's been feeling tired most of the day on chemo. He likes to play with the nursing students (summer time!) in the ward whenever he has the energy. Dr. Wong, one of the surgeons who did Adrian's operation, came to K8N today for another patient and he dropped by and we had a brief discussion on baby's biopsy results. His understanding is that the tumor is considered matured which means it's dormant! And, in conclusion - the prognosis at this point is very favorable???? I, however, am very confused as I kept getting different interpretations of the biopsy report. I may have to ask our M.O. again tomorrow.

Jul 25, 2007

Adrian had a good night sleep last night and his swelling had almost gone by the afternoon. The liver biopsy result finally came in today... the tumor has gotten very "matured" and though it appeared to be heavily calcified, cancer cell is still present! Others (adrenal & pancreatic head) are believed to be all clear! Docs considered it as good news and hopefully this last chemo with the upcoming 3F8 treatment together with the Autologous BMT will help shrink the rest in his liver. We were quite disappointed (hoping to hear that the tumor in liver is all calcified with no cancer cell) but were trying to be optimistic especially on the 1st day of Adrian's last chemo... no reactions as of yet...

July 24, 2007

The first course of Immunotheraphy has finally finished. Adrian has encountered severe pain and allergic reaction as expected. I tried to convince myself that the reactions were somewhat good in a sense that the antibodies will go against the cancer cells in his body. After the 3F8 treatment today, Adrian also had blood transfusion and without much rest, he'll have his 5th chemo tomorrow. Looking at the calendar makes me wonder Adrian is almost half way through his treatment ....I was hoping we can all be home by Adrian's second birthday! Being declared in remission would be the best birthday present for us all.