June 29, 2007

Adrian was well rested at home yesterday and today another day trip to QM for check up and blood test. Almost had a heart attack when we were told Adrian had a very mild high temperature (37.8 C) and the nurse had to recheck again in an hour and if this persisted, he'll have to be hospitalized again!! Luckily, his temp went down a bit at the recheck and we are home for the long weekend. Will be back next Tue and hopefully by then we can meet with the surgeons!

June 27, 2007

Adrian was done with all the tests and results are known. There's both good news and bad news. Good news is that his bones are all clear with no cancer cells!! However, the bad news is the "multiple" liver metastases in both lobes of liver seemed to be scattered and will need the confirmation from the surgeons to see if we can go ahead with surgery. What surprised the doctors are Neuroblastoma seems to present only on the right side of the liver as per the MIBG, whereas CT showed multiple presence in both lobes. There's one possibility that the scattered little "tumors" could be the "scars" that were left over after chemo. So in conclusion, Adrian will be scheduled another test - MRI in the next week or so to check this out. Adrian came home today and will return to the hospital this Friday for blood test.

June 26, 2007

First day of the MIBG test ran smoothly... Adrian slept and woke up right after the test. However, he was given the sedation needle for the CT because it's scheduled right after the MIBG and with the fact that he was just waken up and couldn't fall back asleep on his own. Without much wait, the CT report became available early this afternoon. The tumor in his left adrenal gland and pancreatic head has shown interval decreased in size and calcification is seen. The trickiest part is in the liver... Multiple Liver Metastases is still observed and we won't know until the surgeons view the actual film to determine if the masses are grouped in one area (which is good) or scattered around the liver lobes which makes it harder for surgery. Hopefully we can get to talk to the surgeons tomorrow.

June 25, 2007

Adrian is back to K8N today for his first test - Bone Scan. The Bone Scan was scheduled at 2pm and Adrian had to take sedation fluid prior so he can fall into good sleep. The test took around 45 mins, however, the technician told me to wake Adrian up after about 30 mins because his bladder was so full that it blocked the view when scanning the pelvic bone!!! Poor baby that I needed to pick & wake him up in the middle of his deep sleep and spent another 20 mins to "encourage" him to pee. He didn't fall back to sleep after and a few other people were called to hold him tight when we put him back to the scanner to do the remaining of the test. Baby cried so hard as if there's no tomorrow!! Well, it's not over yet... Another challenge tomorrow for MIBG & CT Scan....

June 23 - 24, 2007

It's the first time being home with Adrian crawling everywhere. Haven't seen him for more than 2 weeks, the grannies were amazed to see the change. Wondered when he's going to make his first step... Baby is well rested at home and slept well at night without being disturbed by the hospital routine work like taking body temperature & BP. Will be back to the hospital again tomorrow by 9am for a series of tests which will run for the next few days.

June 22, 2007

Adrian's motor skills development has been delayed due to his illness. Recently he has just started to crawl at 14 months! He didn't have much space to crawl (only on his own bed) at the hospital and once we arrived home today for home leave this weekend, Adrian enjoyed playing on the floor mat and he became a lot more mobile than the last time he was there (that's more than 2 weeks ago). Baby also started to take the Potassium Iodine solution to prepare for his MIBG test next week. We are all getting very nervous to know how much his tumor has shrunk and if surgery is doable at this point.

Jun 21, 2007

Adrian is still in the hospital today. He had blood test early this morning to see if his Neutrophils level was higher but unfortunately not... it was at 0.12 and in addition, he received 2 units of Platelet transfusion. However, he will most likely have home leave this weekend and be back again next Monday for the exams!!!