Aug 11, 2008

PBMT - Day 245

Today is the first day of school for little Adrian. Mama got to stay with him for the entire 1.5 hours stay there. It was more like free play in the first 30 mins of the class where kids can pick up toys from the shelf and play wherever they like. Adrian must have warmed up by then and the kids were asked to put away the toys and sat around the teacher. They drew a "cloud" on the board and played some songs followed by snack time - that's when Adrian started to get cranky. When asked to sit down for snacks, Adrian ignored the teacher and he walked towards the toy shelf. Mama went to pick him up and had him sat on his chair but Adrian being his usual self, threw tantrums and cried as if there's no tomorrow. He pushed the plate and biscuits away from the desk and refused to eat/drink. Luckily it's towards the end of the class and after calming him down (where other kids were having their snacks), we picked up his school bag and we were ready to leave. We'll see what tomorrow brings...

Aug 8, 2008

PBMT - Day 242

Papa was searching the web on the weekend and found out that Adrian was the 50th child who went through an Autologous cord blood transplant. We are so proud to have made the choice of storing Adrian's cord blood at birth though we never thought we'd use it.

Source: http://parentsguidecordblood.org/content/usa/medical/autocbt.shtml?navid=30

Aug 7, 2008

PBMT - Day 241

We went for the TCM appointment again this morning. Mentioned our concern on Adrian's slightly elevated HVA level, the doc said not to worry as Adrian was looking good based on his palm and tongue. Given that Adrian has been pretty stable lately, we've been prescribed 4 weeks' supply of TCM herbs this time. Instead of waiting our turn there to get the herbs, we had Papa go and pick up the meds for us at lunch time.

Aug 6, 2008

PBMT - Day 240

Adrian has been skipping naps lately... Wondered if it was the afternoon appointments (like the physio session the other day) that screwed his schedule, even though he looked tired, he refused to go to nap and would yell if he was put in his crib. On a day like today where he woke up around 8am, skipped nap in the afternoon and he soon fell asleep in less than 5 mins at around 20:30!

Aug 5, 2008

PBMT - Day 239

It's the first time we had the physio session in the afternoon. Adrian skipped nap and we went to DK the first time on minibus as well. Adrian enjoyed the ride on public transport these days and he'd scream whenever we had to get off. He behaved well in the first half of the session and later didn't follow instructions and wanted to do his own things. Well, it was a good workout afterall and Adrian having skipped nap, he went to bed at 20:30.

Aug 2, 2008

PBMT - Day 236

We headed to the New Territories after Adrian's nap to visit Papa's coworkers. Adrian was the only kid there and he enjoyed playing by himself in the entire play room. It's amazing he was occupied the whole time (approx. 2 - 3 hours) with the wooden train set. So, we are seriously thinking of getting him one...

*dropped off another urine sample to QM this morning for VMA/HVA retest.

Aug 1, 2008

PBMT - Day 235

Another day both Adrian and Mama had to wake up early and finish breakfast by 05:45am! We arrived QM around 09:00 for the last MIBG return scan scheduled at 09:30. The scan took a little over half an hour and we are happy that it's finally done. Now that the mission is complete, the "block" (for the IV port) in Adrian's arm can now be removed. Will probably know the result in our next QM appointment on Aug 18th.

Adrian has been living with his drumstick (i.e. block with IV port) for the entire week.


Ready for school? Adrian's trying on his uniform.