PBMT - Day 62
We all had a very poor quality of sleep last night. First, Adrian fussed and didn't sleep until almost midnight and woke up a few times at night and needed to change him. Baby woke up around 09:00 but refused to get up!!! He was very cranky, didn't behave like him and insisted to lie on bed. He'd cry out loud whenever we put him up. Therefore he skipped breakfast and all we could do is to feed him water using a syringe. We had no clue and decided to bring him back to the hospital by the afternoon, a day earlier than planned (Adrian is due to go back tomorrow for 3F8 treatment). But as soon as we all got dressed up and arrived to K8N, Adrian was all re-charged!! He behaved like normal again.... We mentioned to the doctor of his diarrhea situation and the fact that he refused to eat this morning, baby was given an IV immediately. Blood was drawn and we'd have to collect his stool for culture and virus testing. Adrian's Neutrophils went up to 3.85 with Platelet at 138 and HGB at 10.9. Baby is still fussy but not as bad as this morning. Let's hope he'd have a good night sleep tonight so that Papa can be spared!
Feb 9, 2008
PBMT - Day 61
Last year today, we left Toronto with Adrian for a Chinese New Year Trip in Hong Kong. Little did we know the original 2 weeks vacation would turn into a year long stay in Hong Kong (or more) with Adrian being diagnosed with Neuroblastoma - one of the deadliest childhood cancer. Adrian is still fighting against it to date.... Baby still suffered from diarrhea that he had an average of 5 - 6 loose stools a day. Papa bought a new DVD player this evening and hopefully it'd help to boost up his interests at meal times despite the diarrhea situation.
Last year today, we left Toronto with Adrian for a Chinese New Year Trip in Hong Kong. Little did we know the original 2 weeks vacation would turn into a year long stay in Hong Kong (or more) with Adrian being diagnosed with Neuroblastoma - one of the deadliest childhood cancer. Adrian is still fighting against it to date.... Baby still suffered from diarrhea that he had an average of 5 - 6 loose stools a day. Papa bought a new DVD player this evening and hopefully it'd help to boost up his interests at meal times despite the diarrhea situation.
Feb 8, 2008
PBMT - Day 60
Papa & Mama heard Adrian crying in the middle of the night and then realized baby had diarrhea. We were busy cleaning the mess and luckily Adrian fell asleep immediately after being changed. However, the diarrhea continued for the rest of the day (a total of 3 times) & he threw up again in the evening... We were thinking of bringing Adrian back to K8N today but the nurse told us to monitor his progress given that Adrian is feeling all right despite the watery stools plus he has no fever. In addition to the diarrhea situation, the DVD player also broke down (yes! Having played too many Barney's etc. at meal times - it finally broke down!!!) and all these contributed to Adrian having a very poor appetite. Mama made some rice water the first time for Adrian to substitute the milk at night feed and they are not as "tasty" & "good" as the ones from the hospital!!!!
Papa & Mama heard Adrian crying in the middle of the night and then realized baby had diarrhea. We were busy cleaning the mess and luckily Adrian fell asleep immediately after being changed. However, the diarrhea continued for the rest of the day (a total of 3 times) & he threw up again in the evening... We were thinking of bringing Adrian back to K8N today but the nurse told us to monitor his progress given that Adrian is feeling all right despite the watery stools plus he has no fever. In addition to the diarrhea situation, the DVD player also broke down (yes! Having played too many Barney's etc. at meal times - it finally broke down!!!) and all these contributed to Adrian having a very poor appetite. Mama made some rice water the first time for Adrian to substitute the milk at night feed and they are not as "tasty" & "good" as the ones from the hospital!!!!
Feb 7, 2008
PBMT - Day 59
We brought Adrian out for the first time, not to the hospital, but to the Peak this morning on the First Day of Chinese New Year! Shortly after breakfast, Adrian was all bundled up and he took the whole flight of stairs this time. It was pretty quiet early in the morning at the Peak (this is perfect for the weak baby) and Adrian wore the mask the whole time. We had a walk at the galleria where we finally settled in an Italian Restaurant for brunch. Adrian behaved very well and kept himself entertained while we were eating. It was a pleasant experience afterall and we do look forward to bringing him out more as his body gets better & stronger in the new year. However, Adrian vomited tonight after night feed - we had no idea what went wrong but he seemed to be fine after vomiting. We are going to keep a close eye on him tonight....
Here's a couple of pix we took today using our cell phone:-
We brought Adrian out for the first time, not to the hospital, but to the Peak this morning on the First Day of Chinese New Year! Shortly after breakfast, Adrian was all bundled up and he took the whole flight of stairs this time. It was pretty quiet early in the morning at the Peak (this is perfect for the weak baby) and Adrian wore the mask the whole time. We had a walk at the galleria where we finally settled in an Italian Restaurant for brunch. Adrian behaved very well and kept himself entertained while we were eating. It was a pleasant experience afterall and we do look forward to bringing him out more as his body gets better & stronger in the new year. However, Adrian vomited tonight after night feed - we had no idea what went wrong but he seemed to be fine after vomiting. We are going to keep a close eye on him tonight....
Here's a couple of pix we took today using our cell phone:-
Feb 6, 2008
PBMT - Day 58
We spent half day at the Day Ward on Chinese New Year's Eve. Adrian's Neutrophils stayed at 0.94 with Platelet at 128 and HGB at 9.8. We will be back to K8N next Monday for his last course of 3F8 Treatment. Poor Adrian fell down beside the toy bin this evening. His left eye lid got scratched and his left eye would have been hurt if the wound was a cm closer. The Year of the Pig is no good for Adrian where he was in treatment most of the year and he even got hurt on New Year's eve. Let's hope the Year of the Rat would bring all of us good luck & good health, especially for Adrian!
We spent half day at the Day Ward on Chinese New Year's Eve. Adrian's Neutrophils stayed at 0.94 with Platelet at 128 and HGB at 9.8. We will be back to K8N next Monday for his last course of 3F8 Treatment. Poor Adrian fell down beside the toy bin this evening. His left eye lid got scratched and his left eye would have been hurt if the wound was a cm closer. The Year of the Pig is no good for Adrian where he was in treatment most of the year and he even got hurt on New Year's eve. Let's hope the Year of the Rat would bring all of us good luck & good health, especially for Adrian!
Feb 4, 2008
PBMT - Day 56
We are back to the Day Ward this morning for blood test and line care. Adrian's Neutrophils dropped a bit to 0.91 with Platelet at 147 and HGB at 9.9. Ever since Adrian started walking by himself has made Mama's life a lot easier but he still has no idea how to walk up/down the stairs. The only time he practices is when he's out to the hospital. Today is the day when Adrian actually took the courage to walk up THREE steps in the staircase. He could have walked more but Mama was in a hurry to get him into the car. Looking forward to having him try out more new things - things he got missed out when he was hospitalized....
We are back to the Day Ward this morning for blood test and line care. Adrian's Neutrophils dropped a bit to 0.91 with Platelet at 147 and HGB at 9.9. Ever since Adrian started walking by himself has made Mama's life a lot easier but he still has no idea how to walk up/down the stairs. The only time he practices is when he's out to the hospital. Today is the day when Adrian actually took the courage to walk up THREE steps in the staircase. He could have walked more but Mama was in a hurry to get him into the car. Looking forward to having him try out more new things - things he got missed out when he was hospitalized....
Feb 3, 2008
PBMT - Day 55
Mama & Papa made a trip to the Chinese New Year Market at Victoria Park this afternoon while Adrian was napping. We bought a few fun stuff (e.g. a balloon shield & sword) for Adrian and he's loving them. Adrian finished the first week of Accutane today and his skin is starting to get dry especially on his face and his bald head. There isn't a remedy other than putting cream on to relieve the dryness and hopefully the skin will get better as the med resumes again on Feb 11th (on alternate weeks).
Mama & Papa made a trip to the Chinese New Year Market at Victoria Park this afternoon while Adrian was napping. We bought a few fun stuff (e.g. a balloon shield & sword) for Adrian and he's loving them. Adrian finished the first week of Accutane today and his skin is starting to get dry especially on his face and his bald head. There isn't a remedy other than putting cream on to relieve the dryness and hopefully the skin will get better as the med resumes again on Feb 11th (on alternate weeks).
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