Aug 8, 2007

For some reasons, Adrian has been quite unpredictable in the past 2 days. His schedule has all been messed up in terms of his nap, play & meal time. He was so sleepy today when Dr. BiBi came (the clown doctor) to play magic to the kids and yet he refused to go napping. The cubicle that Adrian is staying has turned into a baby corner... there's altogether 4 babies including Adrian there. It's sad to see there's been a lot of babies being diagnosed with cancer recently & Adrian is no longer the youngest amongst them. Baby is making progress today on his daily consumption and we are aiming to leave K8N by Friday.

Aug 7, 2007

Adrian didn't have a good night sleep last night (so did Papa) as he got waken up a few times because his best buddy in the same cubicle was crying due to cramping. Baby had a short nap in the afternoon as well where he received 2 units of Platelet. His counts haven't hit the bottom yet with Neutrophils at 0.08 & Platelet only at 15. We are ready to go home in the next few days as soon as Adrian picks up his appetite again since he's almost done with his antibiotics.

Aug 6, 2007

In preparation for Adrian's upcoming Radiotherapy treatment, he had to undergo a process called simulation where temporary tattoo are drawn on his body in order to define where to aim the radiation. Because Adrian was required to lie very still during the process, he was given oral sedation as the regular process today for the simulation appointment this morning. Imagine how could someone fall asleep when there were always people (i.e. staff) moving around playing with him and kept changing beds all the time? I was so mad at the arrangement and Adrian didn't fall asleep after spending an hour there. In the end, the houseman needed to give him 3 needles of sedation and 1 shot of Ketamine (K 仔) for baby to go to sleep!!!! Needless to say, baby was in dream-like state and went on strike for the rest of day. He refused to eat AT ALL (simply out of tiredness & poor appetite) and went to bed around 19:30. I'm starting to get worried how baby will behave on his first RT appointment....

Aug 4 - 5, 2007

It's a pretty quiet weekend here at K8N and what a coincidence that there's only Baby Adrian & his best buddy in that section of the ward. The two babies synchronized their routines of napping and eating. At more than 10 days past his chemo (counted from the 1st day of chemo), Adrian still had a very poor appetite and he had the urge to throw up every time while he's having his meals. He threw up all his night feed last night and almost did the same tonight. Baby's cord blood is scheduled to arrive QMH tomorrow from Toronto, however, doctor will still arrange baby for an OT section to extract his bone marrow as a back up just in case the cord blood wasn't enough for Transplantation. So the next step for Adrian is to get fully recovered, get ready for the bone marrow extraction when his counts go back up again.

Aug 3, 2007

Adrian is finally done with his second course of 3F8 treatment today and originally he was going to be discharged tomorrow. However, he developed neutropenic fever early this morning (his counts are low at 0.16 and platelet only at 10 where he needed platelet transfusion today as well), let alone he hasn't been eating in the past few days - therefore, he will need to stay for at least another 5 days for antibiotics!!! The R.O. (Radiology Oncologist) came today to discuss baby's upcoming radiotherapy treatment. Adrian will have a total of 10 RTs (Radiotherapy Treatments) on his left abdomen both front & back incl. his lower part of the spine for a total dosage of "15 degrees". Possible long term effects includes: Poor left Renal & Liver function, Intestinal adhesions and he will be shorter than others as the radiated part of the spine may not grow normally. Well, we don't have a choice... as long as his life is spared!

Aug 2, 2007

Adrian suffered more today when compared to the past three days... his pain got severe and he needed an extra shot of Valium for pain relief. All of us (patients) were excited as Dr. Chiang will be back tomorrow to do the ward rounds this month. I have tons of questions for him such as the timeframe for Adrian's upcoming Radiotherapy & MIBG treatment etc. On the other hand, Dr Cheuk told me that baby's cord blood will arrive Hong Kong next Monday for his Autologous Bone Marrow/Stem Cell Transplantation in 2 months time.

Aug 1, 2007

Doctor has started TPN on Adrian today as per our request. Baby slept a lot these days with roughly 2 - 3 hours of awake time daily. He's so tired partly because of the after-effect of last week's chemo as well as the pain relief medication from 3F8. We've been here at QMH for almost a month.... Hoping to go home on Saturday after the second course of 3F8 if Adrian resumes his appetite.