Nov 11, 2009

Adrian is getting close to two years post-transplant and he's due to go for his last vaccination today (MMR). Instead of going to QMH, we brought him go see his Paediatrician here - the first time in 2.5 years. However, Adrian didn't end up getting the shots simply because the doctor complained we should have brought him see her first thing after we came back from HK!! And because of the fact that Adrian is a "special case" as she quoted, she needed sometime to "study" his case before she gives him the shots! Meanwhile, other than the doc's letter from QMH for which we've given her, she wanted to have ALL copies of Adrian's medical records! Though we had no ideas why she would need ALL because she's not an Oncology Specialist, we would have to provide them to her in order for Adrian to get the shots. Well, at least she's being extra cautious NOW and seeing Adrian has cold-symptoms (runny nose & cough), not only did she got his nasal/throat discharge for the lab, she also prescribed a course of antibiotics to Adrian just to be safe.

Nov 9, 2009

Our contact nurse at SickKids advised us that the results for the MIBG Scan is normal. The next one will be scheduled in 3 months time, after the New Year.

Nov 6, 2009

Being the primary caregiver for a post-transplant person (or cancer survivor), Mama got the H1N1 vaccine this afternoon. Adrian, however, will have to wait until he is fully recovered from running nose and cough before he can get the H1N1 vaccine as recommended by our doc at Sick Kids.

Nov 5, 2009

The actual MIBG Scan is scheduled this morning - it's the FIRST Scan ever that Adrian IS CONSCIOUS, NOT sedated. Mama went into the Scan Room with Adrian for the FIRST time as she was asked to hold Adrian's hand in place as any "moves" would interrupt the scan. We had a hard time getting Adrian changed (into a hospital gown), not to mention had him lie down for the test. Fortunately, Adrian got entertained with the Wiggles' Live DVD this time which make the 60 mins scan more bearable for the both of us. We didn't wait long to see our doctor after the Scan this time. Past urine, blood results and ultrasound were all clear. The MIBG result, however, was not available yet. Our contact nurse will be in touch and let us know the results as soon as she gets it. We're surprised to know our next appointment approx. in Jan 2010 and will involve MIBG Scan again.

Nov 4, 2009

It only took us 30 mins to get to Sick Kids today after school. Poor Adrian got poked twice, one for the blood test and the other one for the MIBG Injection. The last appointment of the day was the Abdominal Ultrasound.... Adrian cries everytime he was asked to lie down. So, apart from watching the "Finding Nemo" movie, Mama actually sat beside him to make him comfortable for the ultrasound. We finished 2/3 of the movie with Adrian fell asleep half way through the ultrasound. Will know the results tomorrow.

Nov 2, 2009

The social worker from the Infant Hearing Program came this afternoon for a home visit. It's more like Q&A where she asked a lot of questions involving Adrian's hearing problems. It's weired she kept asking us what kind of services/support we are looking for but in the end, Adrian only qualifies for TWO of their services. Referrals will be sent to the Preschool Speech & Language Program for speech assessment (which she told us the wait time is approx. 10 months upon completing the first questionnaire) and the York Region District School Board so someone will touch base with us in preparation for Adrian entering JK next year.

Nov 1, 2009

Adrian developed low grade fever last night after having runny nose & cough since Thursday after school. Though we've already brought him see a TCM, we figured we'd take him see a doctor at the walk in clinic today just to play safe at this flu season. Nothing prescribed to him (as expected) as the doctor thinks it's due to viral infection. We're hoping he'll get better by Wed/Thurs so that the MIBG Scan can run smoothly.